Grant: Travel Awards - Institute Community Support

Background: The conduct of patient-oriented research requires pragmatic support for successful partnerships amongst providers, researchers, and patients. A multidisciplinary team funded by the Ontario SPOR Support Unit is co-designing an online module featuring video narratives from patients' and researchers' stories of partnership so that others can learn from their experiences. This presentation will focus on the evaluation plan to better understand the value and impact of learning from this kind of resource from users' perspectives. Methods: The evaluation will employ a mixed methods approach. We will hold 3 focus groups of 4-6 patients and researchers with experience of research partnerships to: assess attitudes and experience with online learning; identify learning needs and interests; and review the content and navigation of the online training module. Participants will explore the module at home for 2 weeks; a follow-up survey will capture the perceived value of the resource, impact on partnership expectations and behavior, and suggestions for improvement. Web access and utilization data will be collected for 3 months following the public launch of the module. Conclusion: Given the limited evaluation evidence to date regarding the perceived value and impact of training and resource materials that aim to support patient-researcher engagement in research, we anticipate that the results will provide insights in several areas: 1) identification of learning needs of patients and researchers related to the creation and sustainability of patient-researcher partnerships across the different phases of the research life cycle; 2) patients' and researchers' perceptions of the value and impact of learning from a diverse sample of others' lived experiences of partnership in their own voices; 3) users' perspectives on the content, design and navigation of an evidence-based online resource that was co-designed with patient and researcher engagement.