Grant: Operating Grant - HIV/AIDS CBR Program - General

Our goal is to establish a sustainable Community of Practice (CoP) - "HIV in Motion" to advance physical activity interventions with patient-reported outcomes (PROs) for people living with HIV (PLWH). It will include HIV+ persons, researchers, clinicians, representatives from community-based organizations, clinics and health centres, and community experts in Canada. Using the HIV Disability Questionnaire (HDQ) as our inaugural project, we will: 1) assess the use of a new short-form HDQ (SF-HDQ) across community-based settings; 2) assess SF-HDQ measurement properties; and 3) establish and sustain a CoP with PLWH, researchers, clinicians, representatives from community-based organizations, clinics and health centres, and community experts to advance PRO tools through integrated knowledge transfer and exchange (iKT) and capacity building. The formation and sustainability of "HIV in Motion" will overlap two technical phases of our inaugural project and lead a collaborative iKT work plan which includes online, in-person and blended capacity building and iKT activities. In Phase 1, we will assess the optimal use of the new SF-HDQ for patients and providers using a combination of interviews and questionnaires. In Phase 2, we will administer the SF-HDQ and assess it properties with PLWH in Canada. Standardized PROs that capture health and its fluctuation over time are critical to guide timely and appropriate HIV care. In earlier work, we developed a 69-item PRO, called the HDQ and demonstrated its reliability (consistency) and validity (accuracy) with PLWH in Canada, Ireland and the United Kingdom. As more adults age with HIV, there is a critical need for a brief yet comprehensive tools to inform interventions that can be equitably used by PLWH and providers. Findings will yield the first known short-form HIV-specific disability PRO developed through community collaborations while championing efforts to bridge PRO-use with interventions for healthy living with HIV.