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Grant: DRA : Canada Graduate Research Scholarship - Doctoral Program (CGRS D)

University of British Columbia

$120,000.00

Mind the Gap: Supporting Childhood Cancer Survivors' Transition from Pediatric to Adult Cancer Care in British Columbia, Canada

FY 2025-26

Summary
Today, more than 86% of children survive cancer, creating a growing population of adolescents and young adults who need lifelong follow-up care. As they enter emerging adulthood, survivors must shift from a supportive, family-centered pediatric system to a more fragmented, independence-focused adult system. This transition often overlaps with major life changes-such as finishing school, starting work, and gaining independence-creating a "double transition" that can lead to disengagement from essential care and poorer long-term health outcomes. Yet, most research examines this developmental and systemic shift retrospectively or in isolation, making it difficult to capture how developmental needs-such as growing autonomy and identity formation-shape survivors' care decisions, their relationships with family and healthcare providers, and their ability to navigate the healthcare system. This study will conduct an 18-month longitudinal ethnographic study, following a group of adolescent cancer survivors in British Columbia as they experience the transition from pediatric to adult cancer care. Guided by participatory action research principles, the study will engage survivors, families, and healthcare providers as partners in the research process to identify the barriers and supports that shape their care transition experience. The findings will inform survivor-driven recommendations to strengthen BC's transition in care protocols, develop training for healthcare providers, and create resources for young survivors and their families-helping ensure every childhood cancer survivor not only survives their illness, but thrives into adulthood.
Program
DRA : Canada Graduate Research Scholarship - Doctoral Program (CGRS D)
Location
British Columbia, Canada
Recipient Type
Academia
Type
Grant
Source
CIHR Funding Decisions Database

As published

Id
560063
Name
Shen Jia Hao (Nathan)
Region
British Columbia
Country
Canada
Orgtype
Institution Paid; Research Institution
Instname2
Cancer Research
Theme2
Health systems / services
Prcname2
DT2 (Health services and population health research) CGRS Doctoral
Projecttitle
Mind the Gap: Supporting Childhood Cancer Survivors' Transition from Pediatric to Adult Cancer Care in British Columbia, Canada
Programtype2
Studentship Programs
Orgnameinp2
University of British Columbia
Cihramount2
$120,000
Cihrequipment2
$0
Programname2
DRA : Canada Graduate Research Scholarship - Doctoral Program (CGRS D)
Keyworddelim
Adolescent And Young Adult (Aya) Oncology; Childhood Cancer Survivorship; Continuity Of Care; Emerging Adulthood; Health Services; Intersectionality; Life Course And Transition Theory; Participatory Action Research; Patient Experience; Transitions In Care
Abstract
Today, more than 86% of children survive cancer, creating a growing population of adolescents and young adults who need lifelong follow-up care. As they enter emerging adulthood, survivors must shift from a supportive, family-centered pediatric system to a more fragmented, independence-focused adult system. This transition often overlaps with major life changes-such as finishing school, starting work, and gaining independence-creating a "double transition" that can lead to disengagement from essential care and poorer long-term health outcomes. Yet, most research examines this developmental and systemic shift retrospectively or in isolation, making it difficult to capture how developmental needs-such as growing autonomy and identity formation-shape survivors' care decisions, their relationships with family and healthcare providers, and their ability to navigate the healthcare system. This study will conduct an 18-month longitudinal ethnographic study, following a group of adolescent cancer survivors in British Columbia as they experience the transition from pediatric to adult cancer care. Guided by participatory action research principles, the study will engage survivors, families, and healthcare providers as partners in the research process to identify the barriers and supports that shape their care transition experience. The findings will inform survivor-driven recommendations to strengthen BC's transition in care protocols, develop training for healthcare providers, and create resources for young survivors and their families-helping ensure every childhood cancer survivor not only survives their illness, but thrives into adulthood.
Competitiondate
202511
Approvedterm2
3 yrs 0 mth
Pinamesdelim
Shen, Jia Hao (Nathan)
Approvedterm
3 ans 0 mois
Cihrcontribution2
~ $120,000~ $0~