Grant: Op. Grant: Knowledge Mobilization in Diabetes Prevention and Treatment - General
University of Alberta
$125,000.00
Advisory groUp of adult patients and caRegivers Of childRen and youth with type 1 diAbetes mellitus (AURORA) Study
FY 2024-25
Summary
Type 1 diabetes mellitus (T1DM) is a life-long medical condition that affects ~300,000 Canadian adults and children. Patients and caregivers are constantly looking for reliable information regarding treatments and ways to manage T1DM complications. Currently, in Alberta, there is no Care Pathway for patients with T1DM (pwT1DM) and thus, both adult pwT1DM and caregivers of pediatric pwT1DM are at a loss regarding their options for treatments and care. Through our Reshape-T1D Study, we have found the voices of adult pwT1DM who express their concerns about finding reliable information for treatments available to them and their need for a centralized information hub.
The proposed study will be a natural extension of the Reshape-T1D Study, and will run in parallel to our recently-funded AURORA Study (Uptake of insuLin pump Therapy and Its outcoMes among patients with type 1 diabetes mellitus in Alberta) that will provide evidence on issues related to access, outcomes, and costs of T1DM in AB. The Advisory groUp of adult patients and caRegivers Of childRen and youth with type 1 diAbetes mellitus (AURORA) Study intends to form an advisory group of adult pwT1DM and caregivers of pediatric pwT1DM to co-create a knowledge mobilization (KM) hub to house the Care Pathway for T1DM.
Adult and adolescent pwT1DM and caregivers of pediatric pw1DM will be recruited to form the AURORA advisory group. A one-day stakeholder engagement workshop will be held to identify the priority areas of T1DM care. The advisory group will co-review the quantitative data from ULTIMA and provide qualitative feedback on modifiable barriers to care. These learnings will be used to co-create the evidence-based KM hub that will detail the T1DM Care Pathway.
The AURORA Study will fill a major gap in the availability of information regarding treatment and care pathways for T1DM in AB. It will lay the groundwork for KM efforts Canada-wide and ultimately enhance the health of the pwT1DM and caregivers.
Department
Program
Op. Grant: Knowledge Mobilization in Diabetes Prevention and Treatment - General
Recipient
Location
Alberta, Canada
Recipient Type
Academia
Type
Grant
Source
CIHR Funding Decisions Database
As published
Id
506637
Name
Kaul Padmaja R
Region
Alberta
Country
Canada
Orgtype
Institution Paid; Research Institution
Instname2
Nutrition, Metabolism and Diabetes
Theme2
Social / Cultural / Environmental / Population Health
Prcname2
Operating Grant: Knowledge Mobilization in Diabetes Prevention and Treatment
Projecttitle
Advisory groUp of adult patients and caRegivers Of childRen and youth with type 1 diAbetes mellitus (AURORA) Study
Programtype2
Operating Grants
Orgnameinp2
University of Alberta
Cihramount2
$125,000
Cihrequipment2
$0
Programname2
Op. Grant: Knowledge Mobilization in Diabetes Prevention and Treatment - General
Keyworddelim
Knowledge Mobilization; Knowledge Translation; Patient And Parent Advisory Committee; Supporting Patients And Families; Type 1 Diabetes Mellitus
Abstract
Type 1 diabetes mellitus (T1DM) is a life-long medical condition that affects ~300,000 Canadian adults and children. Patients and caregivers are constantly looking for reliable information regarding treatments and ways to manage T1DM complications. Currently, in Alberta, there is no Care Pathway for patients with T1DM (pwT1DM) and thus, both adult pwT1DM and caregivers of pediatric pwT1DM are at a loss regarding their options for treatments and care. Through our Reshape-T1D Study, we have found the voices of adult pwT1DM who express their concerns about finding reliable information for treatments available to them and their need for a centralized information hub.
The proposed study will be a natural extension of the Reshape-T1D Study, and will run in parallel to our recently-funded AURORA Study (Uptake of insuLin pump Therapy and Its outcoMes among patients with type 1 diabetes mellitus in Alberta) that will provide evidence on issues related to access, outcomes, and costs of T1DM in AB. The Advisory groUp of adult patients and caRegivers Of childRen and youth with type 1 diAbetes mellitus (AURORA) Study intends to form an advisory group of adult pwT1DM and caregivers of pediatric pwT1DM to co-create a knowledge mobilization (KM) hub to house the Care Pathway for T1DM.
Adult and adolescent pwT1DM and caregivers of pediatric pw1DM will be recruited to form the AURORA advisory group. A one-day stakeholder engagement workshop will be held to identify the priority areas of T1DM care. The advisory group will co-review the quantitative data from ULTIMA and provide qualitative feedback on modifiable barriers to care. These learnings will be used to co-create the evidence-based KM hub that will detail the T1DM Care Pathway.
The AURORA Study will fill a major gap in the availability of information regarding treatment and care pathways for T1DM in AB. It will lay the groundwork for KM efforts Canada-wide and ultimately enhance the health of the pwT1DM and caregivers.
Competitiondate
202405
Approvedterm2
1 yr 0 mth
Pinamesdelim
Kaul, Padmaja R; Butalia, Sonia; Eurich, Dean; Lau, Darren; Senior, Peter A; Yeung Laiwah, Roseanne O
Approvedterm
1 an 0 mois
Cihrcontribution2
~ $125,000~ $0~
