Grant: Project Grant
University of British Columbia
$1,259,946.00
"You can't teach what I know" - Building best practices and capacity for engagement of people with lived experience of incarceration in health research
FY 2025-26
Summary
People who have been incarcerated face significant health inequities, including higher rates of mental illness, substance use, infectious diseases, and shorter life expectancy. Yet, their perspectives are rarely included in Canadian health research. Health policies and programs are often developed for incarcerated people rather than with them, limiting effectiveness and reinforcing inequities. Existing peer engagement guidance in Canada only applies only to people with lived/living experience of substance use and does not account for the unique contexts of incarceration, leaving PLX without meaningful inclusion in research, service planning, or policy. Structural barriers- stigma, surveillance and confidentiality concerns - further restrict opportunities for engagement, with Indigenous people especially affected due to overrepresentation in the criminal legal system. To address these inequities, this project will co-develop best practice guidance (BPG) for ethical and inclusive engagement of PLX in health research to improve correctional health care in BC. Aim 1 will build capacity for engagement of PLX in health research by expanding and formalizing PERCH BC, a provincial advisory body. Aim 2 will adapt BC's Provincial Peer Engagement and Best Practices guidance, tailoring it to incarceration contexts through a scoping review, stakeholder interviews, and focus groups with PLX. Aim 3 will evaluate BPG implementation within Correctional Health Services' Model of Care using the PRISM framework. This five-year project will develop, test, and refine best practice guidance (BPG) for engaging PLX in health research. A provincial advisory group will adapt existing peer engagement guidance, which will then be evaluated in BC Correctional Health Services. Findings will be shared through publications, toolkits, training modules, and creative resources, ensuring that ethical, inclusive engagement practices are sustained and adopted throughout the BC health system and globally.
Department
Program
Project Grant
Recipient
Location
British Columbia, Canada
Recipient Type
Academia
Type
Grant
Source
CIHR Funding Decisions Database
As published
Id
535703
Name
Slaunwhite Amanda K
Region
British Columbia
Country
Canada
Orgtype
Institution Paid; Research Institution
Instname2
Population and Public Health
Theme2
Social / Cultural / Environmental / Population Health
Prcname2
Humanities, Social Sciences, Law & Ethics in Health
Projecttitle
"You can't teach what I know" - Building best practices and capacity for engagement of people with lived experience of incarceration in health research
Programtype2
Operating Grants
Orgnameinp2
University of British Columbia
Cihramount2
$1,259,946
Cihrequipment2
$0
Programname2
Project Grant
Keyworddelim
Incarcerated People; Patient Engagement; Peer Engagement
Abstract
People who have been incarcerated face significant health inequities, including higher rates of mental illness, substance use, infectious diseases, and shorter life expectancy. Yet, their perspectives are rarely included in Canadian health research. Health policies and programs are often developed for incarcerated people rather than with them, limiting effectiveness and reinforcing inequities. Existing peer engagement guidance in Canada only applies only to people with lived/living experience of substance use and does not account for the unique contexts of incarceration, leaving PLX without meaningful inclusion in research, service planning, or policy. Structural barriers- stigma, surveillance and confidentiality concerns - further restrict opportunities for engagement, with Indigenous people especially affected due to overrepresentation in the criminal legal system. To address these inequities, this project will co-develop best practice guidance (BPG) for ethical and inclusive engagement of PLX in health research to improve correctional health care in BC. Aim 1 will build capacity for engagement of PLX in health research by expanding and formalizing PERCH BC, a provincial advisory body. Aim 2 will adapt BC's Provincial Peer Engagement and Best Practices guidance, tailoring it to incarceration contexts through a scoping review, stakeholder interviews, and focus groups with PLX. Aim 3 will evaluate BPG implementation within Correctional Health Services' Model of Care using the PRISM framework. This five-year project will develop, test, and refine best practice guidance (BPG) for engaging PLX in health research. A provincial advisory group will adapt existing peer engagement guidance, which will then be evaluated in BC Correctional Health Services. Findings will be shared through publications, toolkits, training modules, and creative resources, ensuring that ethical, inclusive engagement practices are sustained and adopted throughout the BC health system and globally.
Competitiondate
202509
Approvedterm2
5 yrs 0 mth
Pinamesdelim
Slaunwhite, Amanda K
Approvedterm
5 ans 0 mois
Cihrcontribution2
~ $1,259,946~ $0~