Grant: Team Grant: JPND Call for Expert Working Groups

Background: There is limited pan-European research in health and social services research. There seems to be a geographical gradient as reports describe a significant difference between Western and Northern European countries and those in Central and Eastern Europe. In addition, research is mainly driven by western and northern European countries. Recent studies indicate that efforts for dementia-friendly care and models of good care practice exist in all countries. However, there are large differences between European countries regarding the spread of dementia-specific services. Simultaneously, in all countries, areas with major care gaps and differences between health and social care exist. There is the need to establish an European strategy using a participatory approach by establishing the JPND expert group PANEEUCARE. The objectives of the proposed activity are: • Establish an expert group with experts by experience and research experts in health and social care of dementia to conceptualize health and social care from a pa-European perspective. • Identify, describe and discuss country- and region specific gaps in health and social care for dementia • Exchange models of good practice and scientific evidence between countries • Develop and suggest guidelines for conducting future inclusive research that improves health and social care Europe wide. Results will be obtained by organizing two face-to-face workshops and one PPI-meeting. Information will be shared via presentations and discussions. Meeting minutes will be published, discussed and a final report will be written based on the results during the meetings. The output of the activity will be an enhanced understanding and knowledge of different European health and social care systems with respect to the gaps experienced and the models of good practice implemented. This benefit will be personal to the participants, but also documented and disseminated for the wider research community in an agenda for planning and delivering future inclusive studies acknowledging the inequities between and within European countries and region, especially Central and Eastern Europe.