Grant: Project Grant

Early emerging adulthood (18 to 24 years) is a time of emotional, psychological and social change, and for those living with type 1 diabetes, represents a period of life that is often associated with loss to follow-up, the emergence of long-term complications and increased risk of adverse health outcomes. Gender - known to impact health behaviours, needs, and opportunities for health - is thought to be particularly influential in shaping health-related experiences during emerging adulthood. However, little is known about the relationship between gender and experiences of type 1 diabetes and diabetes self-management as well as how gender might affect the delivery of care to this group. This study aims to provide a theory-informed understanding of the ways in which gender frames individuals' perspectives of type 1 diabetes, impacts self-management practices, and informs delivery of care. To achieve this aim, we will employ critical and arts-based qualitative methods as well as Bourdieu's Theory of Practice. In phase 1, we will conduct focus groups and individual photo elicitation interviews with 30 emerging adults living with type 1 diabetes. Leveraging results from phase 1, we will construct a photographic exhibit that will be shared with formal (e.g. physician, nurse) and informal (e.g. family/friends) care providers in phase 2. Twenty individuals will be recruited from each group (total n=40) to participate in an interview to discuss their perceptions of the exhibit. These interviews are intended to capture the relevance/impact of the exhibit and how it may inform delivery of care and support. Results from this study will provide a deeper understanding of the ways that gender frames illness experiences for emerging adults living with type 1 diabetes and enhance the personalization of care for this group as a result. Findings will also be used to help build a community of emerging adults living with type 1 diabetes and foster opportunities for greater peer support.