Grant: Planning and Dissemination Grant - Institute Community Support

Diabetes is a common chronic disorder that affects over 3 million people in Canada, including 40,000 children and youth under 18. The number of individuals diagnosed with both type 1 and type 2 diabetes (T1D and T2D) continues to rise. This planning meeting will bring together teams from two major Canadian diabetes registries, BETTER and CAPACITY, to explore how they can collaborate more effectively. BETTER (BEhaviors, Therapies, TEchnologies, and hypoglycemic Risk in Type 1 Diabetes) focuses on adolescents and adults with T1D. It collects important information about patient experiences, self-management, and quality of life. BETTER also includes a biobank and self-training tools for both patients and healthcare providers. CAPACITY is Canada's first national pediatric diabetes registry. It gathers detailed clinical data on children and youth with all types of diabetes from pediatric centres across the country. The goal of this planning meeting is to coordinate future efforts that improve diabetes research, care, and outcomes across the lifespan. The funding would support a full-day, professionally facilitated meeting. A facilitator would guide the discussions, lead a pre-meeting survey and visioning exercise, and produce a summary report outlining key findings, priorities, and action items. By combining their strengths with BETTER's focus on lived experience and CAPACITY's rich clinical data; this partnership offers the potential to build a comprehensive, lifespan-oriented picture of diabetes in Canada. This partnership has the potential to enhance research on critical transition points, such as the shift from pediatric to adult care, and address broader issues like stigma, mental health, and the overall burden of diabetes, with the potential to inform and advance care, innovation, education, and policy.