Grant: Project Grant - PA: Patient-Oriented Research - Implementation Science

The number of individuals with one or more chronic condition continues to increase over time. The effects of many people living with a disability are having devastating consequences on patients and families, and placing an enormous financial burden on families, health, and social systems. Addressing the complex care needs of the millions of people living with disabilities from diverse backgrounds requires that different types of health professionals and various government bodies collaborate to address the health and social needs of patients and their families. A growing body of evidence also shows that rehabilitation that is offered to patients at the right place and the right time (i.e., personalized to their experience with the disability) can improve function, engagement in meaningful life roles, and the overall quality of life of patients and their care partners. This personalized care can also reduce costs by providing people with the interventions and services they need, and that science tells us are likely to work. In Quebec, health authorities are trying different approaches to improve care coordination and personalize care for people with disability and chronic conditions to improve how rehabilitation is offered (right time right place for the right person). However, it is unclear if these approaches are working (and if not) what can be done to improve care in these regions. The IN-SINC Rehab program is a team comprising patient/family partners, clinical, community, and decision-maker partners across three health authorities in the Province of Quebec, and researchers. We will study whether these health authorities have been successful at improving outcomes, and why, or why not given each of their contexts. This research will allow IN-SINC Rehab to develop tools and share results with groups around the world to learn how to improve personalized care for rehabilitation from hospital to community.