Grant: Summer Program in Aging

This research focuses on understanding the travel experiences of people living with dementia (PLWD) and their travel companions to identify what makes travel difficult or easier for this population. With over half a million Canadians living with dementia, a number expected to double by 2030, it is important to make places like airports, train stations, bus terminals, and cruises more supportive for these travellers. While travel offers important mental and social benefits, cognitive, sensory, and communication barriers often lead to confusion, frustration, and anxiety, preventing many PLWD from enjoying these benefits. This study has two main goals: (1) to explore the travel experiences of PLWD and their travel companions, identifying barriers, supports, preferences, and needs, and (2) to co-develop and assess a data collection tool that allows PLWD and their travel companions to provide real-time feedback during travel. By directly involving PLWD and their travel companions in the research through a citizen science approach, this project ensures the findings are meaningful and applicable to their needs and travel experiences. The research will take place in two phases. First, a national survey will gather information on the demographics, travel habits, barriers, and supports experienced by PLWD and their companions. Second, workshops will be held to co-develop a feedback tool with input from PLWD and their travel companions, followed by testing the tool during actual travel experiences. This tool will focus on assessing key aspects of travel environments, like navigation, signage, sensory design, and staff interactions. The expected results include a better understanding of what helps or hinders PLWD during travel and practical recommendations for transportation providers, policymakers, and advocacy groups to improve accessibility. The study will also demonstrate the value of using a dementia-informed feedback tool to gather insights in real-world settings.