Grant: Canada Postdoctoral Research Award (CPRA) program

Involving Canadians in health research helps generate evidence that meets the needs of the public. Our ability to engage patients and other community members in the research process is currently limited by time and financial costs, tokenism, and barriers to participation for people from equity-deserving groups. In this project, we aim to develop, apply, and evaluate an approach for crowdsourcing qualitative thematic analysis from people with lived experience of the disease endometriosis. We will investigate whether the approach is time and cost effective, and enables meaningful participation by diverse individuals. We will also measure whether participating in the research process improves trust in science and scientists. This study will provide an evidence-based approach for including more Canadians in the research that advances our health system.