Grant: Planning and Dissemination Grant - Institute Community Support

The Canadian Pediatric & Perinatal HIV/AIDS Research Group (CPARG) has been in existence for over 30 years, and consists of clinicians, researchers, and others interested and involved in the care of children, youth, and pregnant people living with, exposed to, or otherwise affected by HIV in Canada. Five years ago, CPARG obtained funding to create a website to house clinical guidance and resources to support the care of this population and to share findings from CPARG research with the clinical and research community. However, there are still inadequate resources for community members explaining modern aspects of pediatric and perinatal HIV care, and translating new research and recommendations to the community in language that is easy-to-understand and specifically for them. This grant will aim to develop new knowledge translation materials specifically for children, youth and families affected by HIV in Canada, to be shared via the CPARG website (www.cparg.ca) and via other KTE efforts including through community-based organizations. The materials to be developed will include the following: (1) common topics that come up (explaining HIV concepts like transmission and resistance to children; how to disclose HIV status to children; how to prepare adolescents for transition to adult care; U=U and HIV & the law); (2) new clinical recommendations on Infant Feeding, Adolescent Pre-Exposure Prophylaxis, and Care of Infants born to Mothers with Inadequate Prenatal Care; and (3) high-level results from CPARG sponsored research. The creation of these KTE materials will be done in collaboration with community members to ensure they are appropriate to the population and its needs. The goal will be to ensure children, youth and families affected by HIV are aware of the most up-to-date information on clinical care and research, and to create greater trust between community members and clinicians & researchers working on pediatric & perinatal HIV in Canada.