Grant: Team Grant: TiC - Stream 1 - PHSI solutions for transitions in care gaps

Patients in the intensive care unit (ICU) are very sick. When a patient leaves the ICU they may have a change in their health that is new to them and their family members, such as new medical problems or new medications. When a patient leaves an ICU they can move to another part of the hospital or go home. Moving from the ICU to other parts of the hospital can be confusing and stressful for a patient and family because there will be new doctors and nurses and it will look and work differently than the ICU. The only people who remain the same when a patient moves from the ICU are the patient and their family. It makes sense that patients and their family should be at the center of their care as they move from across the healthcare system. The goal of this study is to build a tool that puts the patient and their family at the center and in control of their care. The tool will help family caregivers be involved in the patient's care while they are in the ICU. This tool will teach patients and families about the care a patient got in the ICU, the care the patient needs after the ICU, and medical problems the patient may still have. This tool will encourage patients and their families to reach out to other patients and families for peer support. This tool will improve communication between patients, families, doctors and nurses. These actions will put the patient and their family in control of their care. Once built, this tool will make the care that a patient receives better and more adapted to that patient's needs. The tool will also help patients have better recoveries from their sickness. This tool will be made with and used by patients, families, doctors and nurses. This will make sure the tool is easy to understand and useful for all patients and their families. When patients and families have more knowledge, are involved in the patient's care and can communicate with patients, families, nurses and caregivers, they are put in in control of their care.