Grant: Network Catalyst Grant: Skeletal Muscle Research

Neuromuscular disease includes over 140 different conditions that result primarily in weakness of muscle and/or numbness caused by illness of muscles and nerves. Most of these diseases are quite rare but when considered together they are not uncommon and include conditions such as muscular dystrophy and neuropathy. There are challenges in promoting high quality medical care, education and research for all those affected by neuromuscular disease and those working to provide support, better care and new treatments. The Canadian Neuromuscular (CAN-NMD) Network will unite those individuals, caregivers and families affected by neuromuscular disease with doctors, researchers, allied health practitioners, the Canadian Institutes for Health Research and Muscular Dystrophy Canada to promote better clinical care, advocacy, education and research to improve the lives of everyone affected by neuromuscular disease. The network will improve communication between doctors, researchers and the community. Medical and research information will be shared resulting in better clinical care, education and research. The network will host meetings bringing people together to promote teamwork and move all of these important aspects forward in a way beneficial to Canadians.