Grant: Operating Grant

Children who were either born extremely premature or had a congenital heart defect that required open heart surgery in the first weeks or months of life are two groups of children at high risk for motor, behavioral, cognitive and other developmental disabilities. As such, these children are likely to exhibit limitations in their participation in activities at home, in school and in the community. This study aims to clarify the extent of involvement in leisure activities, known to be critical in promoting health and minimizing risk for cardiovascular and psychosocial sequelae. In particular, this study will identify the facilitators and obstacles to a physically and socially active and satisfying life for these two target groups of survivors of early intensive care. The child, family and environmental attributes that are associated with participation in active physical and other leisure activities will be determined. Involvement and enjoyment of leisure activities is critical for developing life skills, promoting healthy and fit lifestyles, fostering friendships, increasing self-worth and personal autonomy. Of note, a sedentary lifestyle is detrimental to the cardiovascular health of all children, and health risk is likely to be compounded by any chronic illness or disability. Recognition of the factors that influence leisure participation is essential to guide the development of targeted adaptive and remediation strategies and health promotion initiatives that foster health and well-being.