Grant: Project Grant

Over 6 million people in Canada are living with arthritis. Since there is no cure, research is crucial for understanding how arthritis affects people's health and daily lives and for identifying treatments and supports for patients. However, past studies have shown that certain groups, especially those who are diverse or disadvantaged, are often left out of arthritis research in Canada. There's also been little attention on what causes unfair differences in health outcomes (health inequities) and a need for better ways to make sure equity, diversity, and inclusion (EDI) are part of the research process. By addressing these issues, we can ensure that arthritis research is more inclusive and accurately reflects the diverse experiences of all patients. We will work with patients, researchers, providers, and decision-makers (e.g., arthritis organizations, funders) to advance EDI in arthritis research. First, we will conduct interviews with arthritis patients to help create an EDI-focused demographic survey. This survey can be used by researchers in future studies to better collect data on factors that contribute to health inequities. Then, we will use an approach called group concept mapping-online and in-person group exercises with arthritis patients, researchers, healthcare providers, and decision-makers-to identify strategies for recruiting more diverse communities into arthritis research. This project will drive meaningful advancements in research on health, function, and treatment approaches for arthritis. Beyond arthritis, the insights and approaches we develop can also be used in other areas of health research.