Grant: Project Grant

Background: Multiple sclerosis (MS) is a chronic disease affecting the brain and spinal cord, causing various symptoms. The most common type involves unpredictable periods of disability. MS rates are rising, especially in Canada, which has some of the highest rates globally. MS predominantly affects women, with 75% of those affected being female. Women with MS are at higher risk of intimate partner violence (IPV), with over half of Canadian women with disabilities experiencing IPV in their lifetime. Our research shows that women with MS (WwMS) face unique challenges in leaving abusive relationships and often do not disclose abuse to care providers. MS physicians are unprepared to handle IPV. Chronic stress from IPV could potentially worsen MS, leading to more relapses and faster disease progression. However, the full impact of IPV on Canadian WwMS, including how they manage these issues and their health outcomes, is not well understood. Goal & Research Aims: The goal of this study is to understand how IPV affects the health and well-being of WwMS and to identify best practices for MS clinicians. The aims are: To explore the relationship between IPV and the health and well-being of WwMS. To understand how WwMS manage their health, safety, and support needs. To examine MS clinicians' experiences with IPV, and their readiness to respond, to WwMS living with situations of IPV. Methods: We will use a mixed-methods approach, combining surveys and in-depth interviews. We will gather data from a diverse group of women with MS across Canada and from doctors and nurses who treat WwMS. Our research team includes experts in MS, IPV, health services, and lived experiences. Expected Outcomes: This research will provide a better understanding of how IPV affects WwMS. Insights from women's experiences and clinicians will help develop tailored, trauma-informed care and support for WwMS, including training and resources for healthcare providers to improve their care experiences.