Grant: CIHR-ICRH Travel Awards - General pool

Outcome Measures (PROMs) are scientifically developed and validated questionnaires that collect patients' and their caregivers' perspective on their quality of life. Use of PROMs in routine clinical care help health systems to provide patient and family-centered care. However, different interventions to implement PROMs in clinical care do not get desired outcomes because health systems or researchers do not engage patients and their family care providers in the process of selecting appropriate PROMs or co-designing the intervention. This is especially rare in pediatric population. Thus, this abstract provides example from my PhD project which engaged 5 children and youth and their mothers as patient partners throughout the research project. This study also incorporates innovative recruitment strategy such as video material to introduce KidsPRO program and to recruit study participants and patient/family-partners. Novelty of this project lies in the way patients and their family caregivers are engaged throughout the process of developing KidsPRO as a patient-centered healthcare solution. Our project will demonstrate the process of engaging patients which could serve as a standard guide for patient engagement for designing patient-centered healthcare solutions around the world.