Grant: Pfizer Operating Grant in Disease Prevention and Management

The challenges in systems serving children with chronic disease stem from the involvement many different partners, each with different mandates, locations, schedules, agendas, and priorities. This fractionation inevitably creates potential conflicts. The key principles to resolve these conflicts are to identify a shared vision and to communicate about this vision. The Total Clinical Outcome Management (TCOM) is based on these principles and proposes that the shared vision should drive the care process and be based on the needs and strength of the patient and family. The objective of the project is to implement a web-based system to foster shared vision and collaboration, within a shared care functioning model. The web-base system is expected to have two components: a care map and a passport. The former aims at building a shared vision, the latter at promoting communication. The system will be focused initially on children diagnosed with leukemia and children diagnosed with Attention Deficit/Hyperactivity Disorder.