Grant: Team Grant: Transforming Health and Care Systems Joint Transnational Call

Chronic fatigue-related illnesses, including myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), are becoming more common. These conditions cause extreme tiredness and other symptoms that greatly reduce a person’s quality of life. Patients often struggle with physical, mental, and emotional challenges. Many also face difficulties finding the right care because this disease is underrecognized and services are fragmented. This is why the ENCOURAGE-ME project was created. The goal of the project is to propose a new care model for people with ME/CFS. This model can be adapted to help people with other chronic fatigue-related conditions. It will combine different types of support to make care more effective and easier to access. The project focuses on coaching as a key tool to help patients and healthcare professionals work better together. Coaching will be used in three main ways: 1. Health coaching will help patients focus on solutions, learn how to manage their symptoms and improve their well-being. 2. Occupational coaching will support patients in staying at work or returning to their jobs, with advice on adapting work environments to meet their needs. 3. Coaching will also help patients navigate health and social care services, so they can access the right resources and support. The project will also use digital tools to make it easier for patients and professionals to stay connected. These tools will help patients track their health, manage their condition, and get support remotely. This approach allows patients to get care closer to home, which can reduce stress and save time. The ENCOURAGE-ME project will involve patients, doctors, nurses, researchers, and policymakers to make sure the care model meets everyone’s needs. The model will first be tested in specific countries, but it is designed to work in other regions and for other chronic fatigue-related conditions as well. It will create a lasting impact on healthcare systems and the lives of patients.